Misrepresentation: How the Media is Spreading AIDS
Sociological studies of The Acquired Immune Deficiency Syndrome (AIDS) reach far and wide into the topic and encompass nearly three decades of research concerning the epidemic. While many studies begin their analysis with a primer on AIDS and/or HIV such information is not necessarily required for the analysis that is to follow. It is important to note that The World Health Organization tells researchers that there are three zones and patterns of infection inherent in the spread of AIDS: Asia, which now represents the majority of the infection’s growth; the entire continent of Africa, which is possibly the origin of AIDS and also is primarily heterosexual in transmission; and industrialized Western nations make up the last zone. For cultural analysis, we will limit the field of study to the third zone where it is believed that the primary modes of transmission are intravenous drug use and homosexual intercourse (
Where other analysts might find credence in detailing the various symptoms and realities of AIDS, the intent here is to avoid such description and detail and look at the face of AIDS as it is presented to the mass populace. To put the situation in perspective, a few statistics are necessary in order to attain the needed scope in the reader’s mind. It is estimated that 33.2 million people are currently living with AIDS worldwide (UNAIDS, 2007). In January of 2006, the Joint United Nations Programme on HIV/AIDS and the World Health Organization estimated that AIDS has killed over 25 million people since it was first identified in 1981, making it the worst epidemic in recorded history. It has more recently been stated that AIDS claimed an estimated 2.4 to 3.3 million lives in 2005 alone, 570,000 of which were children (UNAIDS, 2006).
The history of AIDS in Western culture has been exhausted in numerous volumes of books and studies since its first discovery on
All forms of AIDS sociology will be called upon for the benefit of this study which aims to reveal the bias and media tendencies in Western culture that have caused AIDS to become a thing of the past to the collective American conscience. Popular cultural representations from public service announcements, movies and branding to pornography and celebrity endorsement will all be examined on the basis that the American public (the study’s main focus) believe that AIDS is no longer a threat.
Much of the information attained and used as evidence in this article has been devised to identify and sample ‘hidden populations’ that are participants in the social construction of AIDS with or without the virus being within their own health concerns (Marshall, 1998). It is important to note that the integration of AIDS into the sociology of human sexuality has spawned many discussions, yet most sociologists agree that by far the most important aspect of AIDS sociology is the education factor.
A major shift in the perception of the AIDS threat has occurred in recent years and has many academics worried that the change in public perception will only exacerbate the problem. In 2007, a Kaiser survey returned results that showed a mere 15% of those polled were personally concerned with becoming HIV positive (a 9% drop since 1997). Where once men and women considered AIDS a reputable and serious risk, they now consider the threat to be outside of their realm. The early 1980’s brought a mass media frenzy that threatened every home with the possibility of infection by unknown sources and in unknown ways. During this period, it was not uncommon practice to use a condom, if not two, plus various other safety precautions because the AIDS epidemic was in full swing. Yet as time progressed and the epidemic killed countless millions over the years, less and less attention was paid to safety.
It can be argued that this change in perception is directly related to scientific advances in the field. AIDS previously was considered to be a death warrant for anyone who managed to contract HIV in one way or another. While no cure has been discovered, new pharmaceutical drugs have advanced so greatly in the past couple of decades that many do not believe HIV to be a serious threat to personal health. The association with death has been removed as the public believes advances in medical assistance, nutrition and sanitation seemingly eliminate the chances of transmission (Kain, 1987).
As stated before, most sociologists continue to tout the importance of education on the topic as a means for changing behavior that could lead to transmission and the continuation of the epidemic. Yet programs that had formerly concerned themselves with educating youth have now been replaced with abstinence programs. AIDS initially was considered to be associated with high risk groups which would be classified as deviant (Albert, 1986a), and it appears that the mass populace has returned to the same belief despite ample evidence to the contrary. It has been noted that AIDS is an important tool for illustrating “the influence of the mass media in the definition of a social problem and the role of the media in the social construction of disease” (Kain, 1987).
So what has caused the drastic shift in public perception of this major health threat? In 2003, a study using household survey date on 2,212 sexually experienced male and female Kenyans was conducted (all between the ages of 15-39). The participants were asked to respond to branded and generic mass media messages concerned with HIV/AIDS and condom use. Questions covered a gamut of sociological perspectives including self-efficacy, condom effectiveness and availability and most importantly the respondents’ own understanding of risk perception. The study found that the respondents who were exposed to branded messages were more likely to consider themselves at a higher risk of acquiring HIV and seemed to understand the severity of AIDS. It was also noted that a higher intensity of exposure to such messages resulted in higher condom use (Agha, 2003).
While the study is focused on a pool of participants in sub-Saharan
Where the Kenyan study reflected the participants’ positive response to branded advertisements, the
The 1991 study elaborated on these earlier findings and was constructed to examine the effects of fear in AIDS prevention messages on a more gender focused basis. One hundred seventy-nine junior and senior business students in a mid-Atlantic urban university were sampled. The results were conclusive that significant differences in perception were found based on the type of appeal, gender of the participant and the interaction between appeal and gender (LaTour, 1991).
The few studies that have been outlined in previous sections of this article all point to the sociological theory of the self-positivity bias. While the general populace is well aware that HIV/AIDS is an international killer, individuals believe they are less likely to contract the virus than others. A 1998 report of HIV/AIDS in relation to the self-positivity bias was completed which encompassed three studies aimed at investigating “the antecedents and consequences of the self-positivity bias in judgments of the risk of contracting AIDS”. The reports concluded that the perceived similarity of another person to oneself and the accessibility of information determine self-perceptions of risk and therefore reduce the self-positivity bias. It is also argued that the self-positivity bias is further reduced when advertisements propounding safe sex are introduced to an individual. Ultimately the report’s greatest indicator is that the more accessible information is, the more likely respondents are to becoming aware of their own chances of exposure (Raghubir and Menon, 1998).
A deeper analysis of media messages is important in understanding the sociological impact of AIDS and advertising as a means of educating. The Research Unit for Health and Behavioural Change (RUHBC) has reported that people cite television as their most immediate and important source for information concerning AIDS. Yet this presents an important contradiction as it has been pointed out that the bulk of HIV/AIDS advertisements are vague, confusing, prejudiced and manage to perpetuate many misconceptions about AIDS that have the potential to spread the disease even further (Watney 1987, Carter and Watney 1989, Holland et al 1989). It is due to this lack of true representation that the true cultural meaning of AIDS is pushed out of sight, causing vital health education messages to get lost or become misconstrued in the process (Brook 1988, McQueen et al 1989).
Jenny Kitzinger’s work, titled “Audience understandings of AIDS media messages: a discussion of methods” attempts to address the issues that accompany these findings. Lucky for Kitzinger, most of her work was already completed and ready for analysis as The AIDS Media Research Project (a three-year ESRC funded project based at the Media Unit,
- Media Production: What determines the form of the media coverage of AIDS? How are stories/reports and campaigns produced?
- Media Content: What information is conveyed about AIDS and how is it presented?
- Audience Understandings: What do different audiences understand from, and think about, the media coverage of AIDS? How might the media shape their beliefs?
Kitzinger addresses the third question in her article which attempts to understand in “both how the media may structure thinking on a particular issue and how the process of audience understanding forms part of the ‘meaning’ of a text”.
Kitzinger concludes, after examining the responses of participants following a battery of different investigative methods, that the meanings of media messages do not merely lie in just the content of the messages but more likely in the readings different audiences bring to the metaphorical discussion. It is therefore argued that such messages are read based on social context and personal experience (Kitzinger, 1990).
A similar argument was posed a few years before Kitzinger’s article which aimed to identify the lay beliefs about the causes, nature and origins of AIDS among young people within the GLBT framework which was contrasted with the beliefs of comparably aged participants who were not of such minority status. It is important for this study to point out that lay health beliefs are assimilated from a variety of sources including scientific and medical sources (Helman 1978, Fitzpatrick 1984) which, within themselves, contain sources of tension and contradiction (Blumhagen, 1980). In the end, the researchers agree that “exploratory and open-ended research into lay beliefs about HIV infection and AIDS is necessary if health educators, policy makers and others are to identify the ways in which people respond to public information campaigns and health education interventions” (Warwick et al, 1988).
How HIV/AIDS is understood as a cultural object is an important sociological scope because the spread of the virus is rarely based on an educated decision. Aside from a subset of fetishists and sociopaths, no one person wants HIV or the resulting AIDS. The gap between contracting the virus and protecting oneself and others from infection can only be bridged by understanding how HIV/AIDS is perceived and commodified in mass market media.
Sociologically speaking, there are two main factors that increase or decrease a subject’s likelihood of becoming infected with HIV: individual risk and societal vulnerability (UNAIDS, 1997). The individual level of risk is based on “what people know and understand, what they feel about situations and relationships, and what they do” (Mane and Aggleton, 2001). The individual risk level can best be lowered by sex education and HIV/AIDS education in an attempt at causing behavior to change (safer sex, safer drug use, etc). Such change would, therefore, spark an increase in general knowledge and awareness and would influence other attitudes and beliefs which enhance access to commodities and services (Mane and Aggleton, 2001).
Societal vulnerability to HIV/AIDS “stems from sociocultural, economic, legal and political factors that limit individuals’ conduct and options to reduce their risk” (Mane and Aggleton, 2001). It is important to note that the societal vulnerability is far further reaching than that of the individual level of risk. Societal vulnerability covers all things from social and economic policies to laws and other social arrangements that most individuals have no agency in, yet are governed by on a daily basis.
Applying the information provided above to actual advertisements and how we understand the sociological implications of AIDS as a cultural object is the next step in solving a growing problem. Following the discovery of HIV/AIDS in 1981, many campaigns began to make the public aware of the threat posed and the actions that would instigate a higher risk of contraction. The 1990’s saw a drastic decrease in these advertisements as scientific advances made the virus less deadly to those who have the ability to attain thousands of dollars worth of medication on top of regular expenses. Now, nearly three decades since its discovery, HIV continues to spread despite public knowledge.
Recent depictions of HIV/AIDS in mass media tend to reinforce the idea that the disease can be beaten and won’t kill those who contract it. The hit play Angels in America was turned into an HBO mini-series which was highly-acclaimed, winning a landslide of awards, yet the subject matter didn’t necessarily educate many on HIV or AIDS. The timeliness of the series struck American popular culture as magnificently acted, telling and historically accurate, yet it wasn’t instilled with any sense of education. Instead, it was accompanied with the idea that the human will battle anything—even the physical.
Another Broadway play was converted into a major blockbuster film even more recently. RENT tells the story of a handful of squatters in the later 1980’s NYC, half of who just happen to be HIV positive. Somehow, despite the expense of AZT (a popular drug which fights HIV’s attack on the body) at the time, each character has his or her own pills and manages to sing without a sense of real urgency or impending doom. Perhaps the most loveable character in the play (Angel) dies of the disease, yet the end of the movie retains the same message of hope that Angels in America exploited to much accord. The reality of the disease is downplayed despite it almost being a character unto itself in the film.
More recently a few commercials and ad campaigns have brought back a resurgence of interest in the AIDS charity realm. In American popular culture, the best way to gain attention for a cause is to throw a celebrity or two in front of it. Jimmy Fallon, of Saturday Night Live fame, filmed a public service announcement reminding Americans that “AIDS is still a problem”. In fact an entire line of ads containing the same message, set against a grey backdrop and filmed on monochromatic film, features one celebrity or another.
Another even grander and more celebrity-studded campaign was released a couple of years ago which was based on the slogan “If one of us has AIDS, all of us have it.” This campaign became known as the “We all have AIDS campaign.” What made it so appealing and memorable was the image that accompanied the bold statement: a large group of celebrities, politicians and religious leaders.
It is important to note that the exploitation of celebrity in the name of HIV/AIDS is yet another misleading market tool which manages to commodify the disease without necessarily spreading awareness or education. Jimmy Fallon, as far as we know, does not have HIV or AIDS. Neither does Will Smith or Elizabeth Taylor. Instead of placing a knowledgeable person who is living with the disease in front of the camera, marketers choose to grant HIV a bit of fame and flash. The effect is that people are moved to make a donation to a random charity, yet they are no better informed of their own risks or how to protect themselves.
Even more blatant commodification can be illustrated with charities/companies such as Product (Red) which combined forces with cell phone makers, GAP Inc. and the like to create special garments and gadgets that are a special shade of red. Why? So people will purchase them and a certain percentage of the profit will go to an AIDS charity. This massive campaign is based in the
Alexandra Chasin, in her book Selling Out, explains how the gay and lesbian movement came to fruition when marketers began targeting their niche due to exploitable and easily spent expendable income. Yet somehow very little of the book details how the market handles HIV/AIDS. One important thing to note is that Chasin explains that much of the money raised by charities like Product (Red) send their money to groups concerned with research, care and treatment but tend to ignore the implications that lack of housing can have on citizens with HIV/AIDS (Chasin, 2000 p.202) Chasin does manage to address the market niche that HIV/AIDS has been forced into, detailing how following the AIDS crisis an “AIDS-related line of goods and services began to appear in the gay market; not all identity groups were equally implicated in the production and marketing of those goods and services. First, viatical companies (which offer cash for the life-insurance policies of people living with AIDS), then insurance companies surging to compete with them, then pharmaceutical companies have played to a gay niche…AIDS-related industries are among the biggest advertisers in the gay press” (Chasin, 2000 p.238).
The exploitation of AIDS as a commodity doesn’t end there. In most advertisements for HIV/AIDS drugs, the image that accompanies the message of hope and health is almost always that of a well-muscled white male playing some sort of hardcore sports. The image, the message and the disease are all fractured apart from each other. The advertisement’s subtext sells the idea that you can simply pop a few pills everyday and live your life to the fullest. HIV/AIDS doesn’t kill people anymore, at least not good-looking, athletic, middle-to-upper-class white men. As argued before, this type of advertisement downgrades the reality of HIV/AIDS and does nothing to educate those who see it.
The American populace has shifted the perceived threat of HIV/AIDS and shoved those who actually have the disease out of sight. Gremk, in his history of AIDS (Gremk, 1990) cites similar denials that followed the initial discovery of AIDS as the “reluctance of the blood industries in the US (and Canada) to acknowledge the potential for transmission via blood products, the resistance to behaviour change-oriented prevention initiatives, and the reluctance to view AIDS as a threat outside certain specific, unique groups of people” (Maticka-Tyndale, 2001). Maticka-Tyndale, in her own analysis of the issue, continues on with Gremk’s assertion elaborating the idea further by stating that “Denial is rooted in the early association of AIDS with sexual practices and intravenous drug use, both of which produce strong moral responses. Each individual, group and nation has justified its denial of vulnerability on the grounds that ‘our’ people, or ‘I’ do not engage in the (immoral) actions that place me at risk. Such claims have also been motivated by fears of political repercussions against countries in the form of restrictions in trade, aid, or tourism; against groups through restrictions on travel and immigration and through isolation and quarantine; and against individuals through stigmatization and discrimination; for example, in education, housing , work, travel and health care.”
One must place AIDS in the scope with all of pandemics that have plagued us as a species. Historically and culturally speaking, all “epidemics emerge and spread along lines of changing social conditions, which vary across countries and regions” (Doka, 1997: McNeill, 1976). To illustrate this point, take the George W. Bush administration, which has sunk hundreds of millions of dollars into abstinence education (in place of sex education). This move correlates with CDC data that shows there was no increase in condom use among US high school students in 2006…for the first time in 14 years.
The political ramifications of HIV/AIDS sparks many a controversy, and it appears that the American public would prefer to use the excuse of moralism to ignore a growing threat. This choice has done nothing to curtail the spread of HIV. This moral/political practice of denial in the face of fact isn’t limited to the
All of these moves, politically and culturally, have been easily accomplished. The marginalized masses who have HIV or AIDS remain in the dark because of the stigmatization associated with the epidemic. The result of such a choice on both sides creates a relatively invisible subset of people whose agency is limited by stigmatization and marginalization. This makes it all too easy to simply blame them for their own fate (Doka, 1997; Herek and Glunt, 1995). Ultimately, this reinforces the denial that AIDS is still an issue here in the
Understanding the cultural implications of such denial can prepare those, in the sociological field to change the path of this epidemic. Yet the field itself is limited in its ability to change public perception as AIDS is not necessarily an “arena for the academic research of theory-building and testing, but first and foremost for the application of disciplinary expertise to problem-solving…the primary purpose of research, however, is to ‘stop AIDS’.” Since 1981, sociologists and other social scientists have been called on to change sexual and addictive behavior, guide policy development, mobilize communities and reverse trends (Maticka-Tyndale, 2001).
The
In order to compensate for the change in public perception regarding the cultural importance of HIV/AIDS, we must change the way it is represented in the media. The real face of AIDS is much darker than twitchy comedians and house hold celebrity names. As the studies earlier detail, perception of the epidemic is what drives the actions of those who are uneducated on the matter. If we hope to curtail the spread of this global pandemic, we have to fight the self-positivity bias by bringing the issue closer to home.
While grassroots organizations have begun to grow in number in response to AIDS across the globe (Adam, 1992; Bartos, 2001; Epstein, 1991, 1995, 1996; Patton, 1986), some members of the HIV/AIDS family have begun using the internet and mass media as a soapbox for autobiography, expertise, self-promotion and dissent (Gillett, 2003). Those who are close to the cause are the most likely to change public perception of the issue by way of media activism. The revitalization of HIV/AIDS as a threat to the individual and society as a whole is the first step towards stopping its spread and finding a cure.
Bibliography
Adam, B. "Sociology and People Living with AIDS." Ed. J Huber and B Schneider. The Social Context of AIDS (1992): 3-18.
Agha, S. "The Impact of a Mass Media Campaign on Personal Risk Perception, Perceived Self-Efficacy and on Other Behavioural Predictors." AIDS Care 15 (2003): 749-762.
Bartos, H. "Sustainable Social Mobilization Against AIDS." AIDS Impact: Biopsychosocial Aspects of HIV Infection.
Blumhagen, D. "Hypertension: a Folk Illness with a Medical Name." Culture, Medicine and Psychiatry 4 (1980): 197-227.
Boseley, S. "U.S.-Islamic Alliance Hits AIDS Hopes." The Guardian 28 June 2001. 8 Mar. 2008
Brook, L. "The Public's Response to AIDS." British Social Attitudes. Ed. R Jowell, S Witherspoon, and L Brook. Gower: Aldershot, 1988.
Carter, Erica, and Simon Watney. Taking Liberties. London: Serpent_Tail, Published in Association with the ICA, 1989.
Chasin, Alexandra. Selling Out the Gay and Lesbian Movement Goes to Market. New York: St. Martin_P, 2000.
Doka, Kenneth J. AIDS, Fear, and Society Challenging the Dreaded Disease. Washington, DC: Taylor & Francis, 1997.
Duck, J, D Terry, and M Hogg. "The Perceived Influence of AIDS Advertising: Third-Person Effects in the Context of Positive Media Content." Basic and Applied Social Psychology 17 (1995): 305-325.
Epstein, S. "Democratic Science? AIDS Activism and the Contested Construction of Knowledge." Socialist Review 21 (1991): 35-64.
Epstein, Steven. Impure Science AIDS, Activism, and the Politics of Knowledge. Berkeley: University of California P, 1996.
Epstein, S. "The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials." Science, Technology, and Human Values 20 (1995): 408-437.
Expanding the Global Response to HIV/AIDS Through Focused Action. UNAIDS. Geneva: UNAIDS, 1997.
Fitzpatrick, Ray. The Experience of Illness. New York: Tavistock, 1984.
Global HIV Prevalence Has Levelled Off; AIDS is Among the Leading Causes of Death Globally and Remains the Primary Cause of Death in Africa. UNAIDS. UNAIDS, 2007. 21 Jan. 2008
Grmek, Mirko D. History of AIDS Emergence and Origin of a Modern Pandemic. Princeton, N.J: Princeton UP, 1990.
Hankins, C. "Global Magnitude, Consequences and Costs." AIDS Impact: Biopsychosocial Aspects of HIV Infection.
Helman, C. "'Feed a Cold, Starve a Fever' Folk Models of Infection in an English Suburban Community and Their Relation to Medical Treatement." Culture, Medicine and Psychiatry 2 (1978): 107-137.
Herek, G, and
HIV and AIDS in
J, Gillet. "Media Activism and Internet Use by People with HIV/AIDS." Sociology of Health and Illness 25 (2003): 608-624.
Johnson, K, and Ms Latour. "AIDS Prevention and College Students: Male and Female Responses to "Fear-Provoking" Messages." Health Mark 8 (1991): 139-153.
Kain, E. "A Note on the Integration of AIDS Into the Sociology of Human Sexuality." Teaching Sociology 15 (1987): 320-323.
Kitzinger, J. "Audience Understandings of AIDS Media Messages: a Discussion of Methods." Sociology of Health and Illness 12 (1990): 319-335.
Latour, Ms, and Re Pitts. "Using Fear Appeals in Advertising for AIDS Prevention in the College-Age Population." J Health Care Mark 9 (1989): 5-14.
Laumann, Edward O. The Social Organization of Sexuality Sexual Practices in the
Marshall, G. "AIDS, Sociological Studies Of." HighBeam Encyclopedia.
Maticka-Tyndale, Eleanor. "Twenty Years in the AIDS Pandemic: a Place for Sociology." Current Sociology 49 (2001): 13-21.
McNeill, William Hardy. Plagues and Peoples. 1st Ed. ed. Garden City, N.Y: Anchor P, 1976.
McQueen, D, T Gorst, L Nisbet, B Robertson, R Smith, and D Uitenbroek. Interim Report No. 1. RUHBC.
Overview of the Global AIDS Epidemic. UNAIDS. 2006.
Patton, Cindy. Sex and Germs the Politics of AIDS. 1st Ed. ed. Boston: South End P, 1985.
P, Mane, and P Aggleton. "Gender and HIV/AIDS: What Do Men Have to Do with It?" Current Sociology 49 (2001): 23-37.
Raghubir, P, and G Menon. "Aids and Me, Never the Twain Shall Meet: the Effects of Information Accessibility on Judgments of Risk and Advertising Effectiveness." Journal of Consumer Research 25 (1998).
"UN: AIDS Conference Whitewash." Human Rights Watch. 20 June. Human Rights Watch. 8 Mar. 2008
Warwick, I, P Aggleton, and H Homans. "Constructing Commonsense - Young People's Beliefs About AIDS." Sociology of Health and Illness 10 (1988): 214-233.
Watney, Simon. Policing Desire Pornography, AIDS, and the Media. London: Methuen, 1987.















